Lets get serious...

Hey guys!
I try to bring up serious topics as well on this blog because I feel like it's important to spread news and awareness, as well as you guys understanding my opinions and me because after all, this is a semi-personal blog.

I've written about the school shooting in Parkland, Florida and I don't want anybody thinking that just because it's been a while since last schooting that everybody's just stopped caring or thinking about it. This is a serious problem and not only the US, althought 99% of the problem is with the US in this case, has to lecture about gun safety and safety in general. We need to look after each other, otherwise we're doomed. And from the topic of looking after each other, I want to bring up another issue that I think is horribly misunderstood and needs to get more focus.

In January this year two parents locked themselves and their two young teenaged daughters in their house and killed their kids and then took their own lives. It's just such an unimaginable thing that isn't supposed to happen, but still it did.
Not much information has been released to the public about this murder suicide, but the police did find a suicide note written by the father where he says that they're finding no life quality and that this life isn't worth living, and names their daughters disease as a cause for this. Of course I let my morbid curiosity take the better of me and I recently googled for answers about what disease the daughers were suffering from, because if it's to the point where you think that killing your entire family is a better fate than living with this problem, then it must be really big. And it was.
I'm not going to go into details about this case because they do deserve to rest in peace and although the parents commited a horrendous crime, I can understand where they're coming from since I've been severely suicidal myself. The daughters were diagnosed with CFS which stands for Chronic Fatigue Syndrome. This is briefly mentioned in the note that we know.

Chronic Fatigue Syndrome can affect anybody, but around 80% of the patients are women, which can be a cause to why this hasn't really been taken seriously before, and still isn't common knowledge. It's hard to get a diagnosis because there's no tests that you can take to measure your symptoms, instead the doctors have to listen to what you and the people around you are saying, and then go by the elimination method to find out what it is. The following part is taken from Wikipedia and it tells you about the different symptoms that a patient can experience.

"The most commonly used diagnostic criteria and definition of CFS for research and clinical purposes were published by the United States Centers for Disease Control and Prevention (CDC). The CDC currently recommends the following criteria for diagnosis:
 

  • Significantly lowered ability to participate in activities that were routine before the onset of the condition, and persisting more than six months
  • Physical or mental activity causes worsening symptoms that would not have been problematic before the onset of the condition, (post-exertional malaise (PEM))
  • Sleep problems


Additionally, one of the following symptoms must be present:
 

  • Difficulty with thinking and memory
  • Worsening of problems with standing or sitting


Other common symptoms may include:
 

  • Muscle pain, joint pain, and headache pain
  • Tender lymph nodes in the neck or armpits
  • Sore throat
  • Irritable bowel syndrome
  • Night sweats
  • Sensitivities to foods, odors, chemicals, or nois"


Wikipedia

So I'm currently watching a documentary on Netflix called Unrest and it is insane. The people that are being interviewed have so difficult life that it makes me - a bipolar asperger kid with scoliosis and a shitload of allergies - seem 100% healthy and strong. These patients have a hard time just putting one foot down on the floor, or walk up a stairs or even have their windows rolled up so they can see outside. And like I said, this is something that hasn't been talked a lot about and is rarely taken seriously, but this is an extreme issue that we need to focus more on because nobody knows where this is coming from and nobody knows how to cure it.
But back to the family; assuming that you have two children who are constantly sick, can't leave the house so they have teachers over for homeschooling three-four hours each week (which they had), can't walk or maybe not even talk, which can also be an issue, think straight or even hold up a camera long enough to take a selfie. Can't move around other than to drag themselves across the floor while in pain (I don't know how evolved these girls symptoms were), and you have to watch them suffer every hour you're awake. Watch your child fade away, and someone saying that this is only going to get worse. I'm fairly sure that I would kill my children at that point, and I'm sorry if that makes me a bad human being but I would not want my kids having so suffer so horribly knowing that they're only going to feel worse, and worse, and worse.
Now, again, I'm not saying that it's okay to kill your children, because it's not, but I do understand where they're coming from and I think people need to have more understanding and knowledge about this situation and aweful disease before pointing fingers.

So this is only my take on this whole thing, I just wanted to talk about how happy I am each and every day that I'm alive and relatively well. I can do almost anything and that's an amazing feeling to know and I cherish it and I think you should too. Watch the documentary, it's called Unrest, donate money to science if possible and be thankful.

❤️

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